
I've noticed in the last month Patch has had more nightmares and been crying a ton more than usual, which is a lot in the first place for a kid his age. He's short in patience and ultra sensitive. I know this has a lot to do with his over active sensory issues, but for some reason it seems worse this month than it's been in a long time.
The other day he cut his fingers in a bush, I heard him screaming from three houses away. It wasn't that it hurt, it's that he could see the cut and that it might bleed. He did the same thing this morning when he was hit with a snow ball. It didn't hurt as bad as he made it sound, it's that it was wet and uncomfortable. It made him hysterical.
He's also back to being afraid of being alone, outside and in the house. Even if he's by the door, someone has to be outside with him. He went into the garage this morning and thought I was coming behind him because I was in the laundry room. The door shut behind him and it wasn't even seconds before he came running in with a look of terror on his face asking, "why didn't you come with me? I don't like to be outside alone!". My fear is that he won't go to his friends without me holding his hand along the way like last year, or that I'm going to go back to standing next to the bathroom door while he does his business.
I've recently been wondering if his sensory issue is heightened in the fall/winter because it's darker earlier and colder. I don't know if I can handle another season like last year, but at least I have the tools to help us get through if that's the case.
I've spent the last year studying Patch and what makes him tick. Trying to control the things that trigger him and training our family on how to deal with Patch so that he doesn't get special treatment but learns to deal with things no matter how hard they may be. I've had dozens of conversations with Shauna and other friends to deal with his issues, looking for answers so that we all stay sane.
I just feel every day he's getting worse as October passes us by, I wish I could stop it.
My wish is that his friends would understand and be a little more patient with him, but I know that they are children and can't understand that he needs less teasing and more kindness, just like they do. He can be so mean to his friends, he struggles all the time trying to express what's frustrating him so he says mean things or hurts them.
I feel so blessed for all those who've listened and offered to take Patch so that we both can have a break. I truly love this little boy and my heart aches that this time in his life is so hard for him. We'll get this figured out.
5 comments:
It is special treatment when you have to teach others how to behave around someone or treat someone with these sensitivities vs. the other way around. That's not a bad thing, it's what's necessary to make life smooth for everybody. If you didn't include teaching Patch how to "deal" when he gets overwhelmed, that would be the kind of special treatment you mean, because it would mean that you weren't teaching him responsibility for himself (to the degree that he can be). But you do, and that's part of what makes you the perfect mom for him! You teach all your kids about owning their actions and you don't use Patch's issue to make excuses like some moms with special needs kids do.
Patch is special and he's lucky to have you!!
First, that picture is a perfect way to preface this post because years later when Patch is reading this, he's going to know he's a normal boy that has to deal with a certain struggle, like we all do.
I feel for you my dear friend. You are a special mother to love Patch for who he really is. That's why you are there. The Lord knew Patch would have these strugggles and gave him to you because he trusts you. Thank you for being an inspiring example of true Christ-like love.
Don't get me wrong.. I know it's not always good but when you are trying so hard despite it all, that's when you know it's Christ-like.
Love ya girl!
I can totally relate to your fears and wishes for your son. I think one of MY biggest problems is that I have to let go of what anyone else thinks when they look at him.
You are doing a wonderful job. Keep your head up, accept help, be on your knees, be brave. You (& he) will get through this.
We have been going through the same things with Caleb. This past summer we finally had him tested and found out what his issues are. It's hard to know what to do for your kids but we did find out that Caleb has high anxiety disorder which seems so odd to me as he's a kid and shouldn't have anxiety. We have tried many things and finally found some stuff that work.
But anyway, I only tell you this to let you know that you have someone who understands. It's not easy and if you ever want to talk about it I'm here for ya. Your a great mom. Don't doubt that. You'll find the best ways to take care of Patch.
Thank you for being a prent that cares, a parent that is aware of strengths and weaknesses, and that loves their child. It makes all of the difference in the world.
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